Another Little Boy, Another Big Diagnosis

On one hand, I cannot believe I am about to write this post.  On the other hand, I knew it was just a matter of time.

We had a medical evaluation for A yesterday.  I am numb with pain.  I am gripped by fear.  I am angry at God.

I am a mom to two boys with an Autism Spectrum Disorder.

Alex is only 20 months old.  Due to his age,  the evaluation team decided to use what is called the DC: 0-3, for children birth to three years old, instead of the DSM-IV criteria for ASD diagnosis.   Alex was diagnosed with Multi-System Developmental Disorder (MSDD).

MSDD is considered a “crosswalk” diagnosis to Autism and PDD-NOS. Had he been a little older, the psychologist said she would have diagnosed him with PDD-NOS.  We have to have him reevaluated in one year at which time they will determine how he will qualify under the DSM for an ASD diagnosis.  As A matures and we are better able to understand him, his diagnosis will be changed to either PDD-NOS or Asperger Syndrome.

I am happy to have some answers, but heartbroken to know his life is not easy and won’t ever be easy. I knew that, but it is just so definite now. It is a lot to take in.  It is just so unfair.


6 Comments (+add yours?)

  1. akbutler
    Dec 23, 2010 @ 12:21:46

    ugh. ugh. I am so sorry.
    you know we’re doing this ourselves now with our youngest. You have been braver than me. I can’t even fill out the paperwork.
    You are a strong mother and will tackle this head on, just like you’ve done with your oldest. And the earlier the better. You’ve done right by your family and your boys.
    Not the holiday gift you wanted, I’m sure. We’re all here if you need us.


  2. akbutler
    Dec 23, 2010 @ 12:22:29

    by the way, you’ve just pushed me to fill out the paperwork for my youngest. that was your holiday gift to me – the gift of strength.


    • autismisnot
      Dec 23, 2010 @ 12:32:36

      Thank you, Alysia. I know you understand all too well. I am happy to give you the strength to do this, but so very sad that you are in the position to have to make that decision.


  3. Spectrummy Mummy
    Dec 23, 2010 @ 13:51:22

    I’m so sorry, and echo Alysia’s words: we’re all here for you, walking this path together.


  4. ehgivler
    Dec 23, 2010 @ 16:44:14

    I have two boys on the spectrum, ages 10 and 15. It is not easy. What you have learned in your journey thus far will help lead you on your journey with this little guy.


  5. Brandis
    Dec 28, 2010 @ 11:58:39

    I’m so sorry, lady. You have a tough road ahead but you are strong & so are your boys. I’ve got you & your family in my prayers, & know I’m thinking about you.


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